Clara - Hoping to Find a Cure
Thanks for visiting....

As many of you already know, Clara was diagnosed December 29, 2010 at 4 1/2 yrs old with Juvenile Dermatomyosits. This was very hard news to take.  We went to the doctor simply because Clara had a rash.  We thought that she was possibly allergic to our Christmas tree, since the rash appeared the week that we got our tree.  

I spent the next month reading anything and everything that I could find about the disease.  Ok, it was more like every day since that day but, who's counting? :)  

Because Juvenile Dermatomyositis is so rare (only affecting 3 in 1,000,000 children), there is not a lot of funding that goes into research.  There is no cure! However, children can go into remission.  

Please feel free to read Clara's story.  I will try to keep it updated as much as possible.  












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